After All These Years

Standard

Late May of 1997, I met a really cute guy in the bleachers at our spirit day festivities. There was only a week of school left. I told my friend Sarah that I thought this guy was cute, and at the end of the day she and her boyfriend showed up at my locker, cute guy in tow. We ended up dating all summer, but when school started again he went to public school and I went back to Catholic school. It was hard to keep it going, because I was young and easily distracted. In the end, I broke up with him, and life went on.

On a typically boring Friday night a few weeks ago, Facebook suggested him as a friend. I added him and sent a message like, “idk if you remind me, we dated almost 20 years ago”. Saturday evening, he wrote back and we talked for awhile, and it turns out he’s always had me in the back of his mind. He’s been married once, has one son, has a good job, and apparently thinks I’m beautiful. We’ll call him Squishy.

One afternoon, Squishy and I went to Chipotle for lunch, and while we were standing in line a woman turned to us and said “We are starting a hug campaign, would you like to be first?” So I said sure, and then Squishy and I proceeded to hug five strangers just for the hell of it. It was weird, but it was awesome! People need to give and get more hugs! How was this my life?

I know that you guys might think I’m crazy, falling in love almost immediately. But when Squishy walked back into my life that day, it was like I had finally come home. I texted him, I talked to him on the phone, then I saw him in person… the last time I saw him was almost exactly 19 years ago. I was young and dumb. Things happen. I spent the whole time looking for someone who treats me the way he did – the way he does – and finally he’s back. He’s here. The only time I have felt this much joy in my heart was when JI and Squeaks were born, and when I reconnected with my birth mother. I feel whole. I feel happy. Not honeymoon, new love happy, but comfortable happy.

Advertisements

I’m Back

Standard

It’s been a long time since I updated, thanks mostly to my chromebook keyboard suddenly ceasing to work properly. I don’t know what happened, it just stopped working one day. Then a few weeks later, half the keys worked but there was no real pattern to it. So I finally got a wireless USB keyboard and mouse from my dad, and now I can use my chromebook again! YAY!

ji2So anyway, kindergarten started off great. The first day was, in JI’s words, “Absolutely perfect”. I cried for about twenty minutes when he got home. Day two… shit hit the fan. My son JI was sent to the peak aka behaviour room. Day three, okay. Day four, his behaviour was so bad that I had to pick him up early and he was asked to not return. They wrote on the report that he assaulted a teacher. He’s five. He kicked her because she got too close. JI was off for the next week as we tried to find a spot in an ED classroom rather than the general SpEd/Autism room he was in the first week. We got a spot at a different school, and he attended half days at the original school for a week until the transportation was figured out.

He’s been at the new school for a full week, three days, plus Monday and Tuesday. Monday was his first rough day, but he got himself under control. Yesterday after lunch/recess, I guess he started melting down and couldn’t stop. The teacher called me at 2:45pm, and I could hear JI screaming. He said JI was throwing chairs, trying to bite/hit/kick, took off his socks and shoes and threw them, etc. He wouldn’t or couldn’t calm down. It wasn’t until they told him I wouldn’t be coming that he calmed down to get on line for the bus.

jiThe problem is that he doesn’t act like this at home. He doesn’t get violent or aggressive towards me or any other people – and to be clear, he wasn’t at school either, not towards any kids or adults until the adults attempted to get close to him. If he and I have a disagreement, I either remind him of his choices or I tell him the consequences of not doing what he’s told. I’m frustrated because I’m not the special education teacher, I’m not the expert, but they expect me to tell them what to do. I don’t know what to do because he does not do this around me! There was a short period of time when he did, but we suffered through it and moved on. I merely held my ground.

Is JI trying to feel them out? Is there something about school that changes a kid’s personality? Will this eventually pass, or is my high functioning, highly intelligent, super cute, loving autistic child doomed to end up in juvenile detention or some kind of home?! I know it’s the first incident but the way things went at the last school, I’m really nervous. We had a conversation last night and this morning about how he should act when he’s upset or angry, and I hope it sticks.

The Journey Continues

Standard

Back in September we got the provisional diagnosis of Autism for JI. Since that time he went through more evaluations and observations, and earlier this month we received the official diagnosis of ASD level II + Unspecified impulse control & conduct disorder.

School this year was, to put it mildly, horrible. The year started off great, then got really really bad, then it was okay, and then it was just nothing. We agreed to end his school year early because he was basically just sleeping at school every day, and the thing they needed to do with him, socialization, wasn’t being accomplished at all. He only missed nine days, so I don’t care, and the daily fighting was getting to be too much every morning. He’s not even going to participate in the “graduation” because merely mentioning it sends him into a panic. No thank you. I’m so ready for summer and preparing for a new start at a new school.

Because we have the official diagnosis, it was added to his IEP and now we can get the exact services and therapies we need for him. When he starts kindergarten in the fall, he will spend some of the school day in a resource room and some of the day with the NT kids in the regular classroom. He will receive behavioural and speech therapy regularly, and occupational therapy as needed.

The strangest thing about autism is how it is SO different from one child to another. Sure, there are certain signs and symptoms that are shared by all kids on the spectrum, but even those are not always the same. Just because I can parent my autistic child doesn’t mean that I could parent your autistic child. Maybe it would be easier, maybe it would be harder. There are so many differences!

Personally, I have very few problems with JI,  likely because I suspect I am on the spectrum myself (a therapist suggested this years ago, and I definitely fit a lot of the traits) and also because I understand what it is like to be a “weirdo”. All my life my mom told me how weird I am, friends and strangers have called me weird, and I always feel weird. I get why he can’t or won’t do certain things, eat certain things, etc. I know how to talk to him to get him to behave and comprehend what is happening. I’m excited for kindergarten and a new school with all new teachers, if only because I feel that his pre-K had their mind made up about him being the bad kid, the troublemaker. I hope that a whole new environment will mean a good fresh start!